May is ALS Awareness Month

How does this month come around so quickly? Wasn’t it just Christmas? Could it be that it is my birthday and I have gone nearly 56 times around the sun? Or maybe because our lives changed dramatically with my husbands diagnosis of ALS, Lou Gehrigs Disease, and there is still so much work to be done. There is still no CURE for ALS and time is not on our side. Last year, “Our Tribe” was amazing. Please consider giving again this year to help find a cure for ALS!

Once again I am laying it out there that Research is desperately needed for those facing Amyotrophic Lateral Sclerosis (ALS), also commonly known as Lou Gehrig’s disease. It is devastating. It slowly kills the body’s motor neurons, paralyzing every muscle in the body until patients lose their ability to walk, talk, eat and eventually breathe. Today, there is no cure. Life expectancy is 2-5 years. In short, ALS sucks.

We want to help raise awareness and funds and we have chosen ALS Therapy Developement Institute (ALS TDI) as our Charity of Choice. Here is why.

Our family wishes to see the day when no other family has to go through this experience of battling ALS. We are committed to help raise awareness and funding for ALS research. The ALS Therapy Development Institute and its scientists actively discover and develop treatments for ALS. They are the world’s first and largest nonprofit biotech focused 100 percent on ALS research. Led by people with ALS and drug development experts, they understand the urgent need to slow and stop this disease.

Team Hilliard Threads for ALS!

Something new …

Team Hilliard Threads for ALS

We also have a new way to give back to the ALS Research Community! We have launched a T-shirt website called “Team Hilliard Threads” where we are offering a few T-shirt designs that People living with ALS can customize for their Team or fundraising event and we will donate every dollar through the month of May back to ALS TDI. You can contact us directly to upload your personally designed logo!

The strategy to fight back against ALS is simple. Find ways to slow down the progression while research can continue to advance towards either halting its progress or even reverse it.